Last night’s gathering at Trek Store was an opportunity for ALS Cycle of Hope’s team to understand more about “The Road less traveled”. Ellen Mahoney, ALS Victoria Chapter president, explained the illness and how the local chapters help support families and patients. Ellen informed us that there are approximately 30 people in Victoria who have ALS, 300 ALS patients in British Columbia and 3000 ALS patients in Canada. ALS affects males and females evenly, 90% of cases are unexpected– and 10% of cases are familial. Once diagnosed, ALS leaves patients with an average of 3-5 years of life– and those years are extremely challenging for the caregivers/families.
It was encouraging for the Team to know that the funds raised with ALS Cycle of Hope’s events will help:
- provide direct support to ALS patients, along with their families and caregivers, to ensure the best quality of life possible while living with ALS.
- assist research, where researchers are committed to finding the cause of, and cure for Amyotrophic Lateral Sclerosis (ALS).
Needless to say, the evening was extremely informative and convinced us all that our volunteering time and commitment to ALS Cycle of Hope is inspiring for ALS patients. By raising ALS awareness, we can help increase public knowledge and raise greater funds for ALS Canada.
Thank you Trek for hosting us and to Ellen Mahoney for your insightful presentation.
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